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C9orf72 Frontotemporal Dementia and/or Amyotrophic Lateral Sclerosis
An amyotrophic lateral sclerosis that is caused by mutation in the C9ORF72 gene on chromosome 9. It is characterized by adult onset of either frontotemporal dementia and/or amyotrophic lateral sclerosis.
This information is for educational purposes only and is not medical advice. Always consult your healthcare provider about your specific condition and treatment.
When to seek help
Seek medical help right away if you have severe, sudden, or worsening symptoms, trouble breathing, chest pain, or any symptom that feels life-threatening. This community is for peer support and education only and is not a substitute for professional medical advice.
If you are experiencing a medical emergency, contact your local emergency services immediately.
Overview
An amyotrophic lateral sclerosis that is caused by mutation in the C9ORF72 gene on chromosome 9. It is characterized by adult onset of either frontotemporal dementia and/or amyotrophic lateral sclerosis.
Resources
Join the C9orf72 Frontotemporal Dementia and/or Amyotrophic Lateral Sclerosis community
Talk with people who understand, share what helps, and find support from others living with c9orf72 frontotemporal dementia and/or amyotrophic lateral sclerosis. Private, moderated, and free.
Posts in this community reflect personal experiences, not medical advice. Always talk to your doctor before changing your treatment.