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Hyperferritinemia-Cataract Syndrome
A syndrome characterized by elevated circulating levels of ferritin without iron overload and early onset cataracts that is caused by heterozygous mutation in the iron responsive element in the 5-prime noncoding region o
This information is for educational purposes only and is not medical advice. Always consult your healthcare provider about your specific condition and treatment.
When to seek help
Seek medical help right away if you have severe, sudden, or worsening symptoms, trouble breathing, chest pain, or any symptom that feels life-threatening. This community is for peer support and education only and is not a substitute for professional medical advice.
If you are experiencing a medical emergency, contact your local emergency services immediately.
Overview
What are cataracts? A cataract is a clouding of the clear lens inside your eye. This cloudiness blocks light from reaching the back of the eye, making it harder to see clearly. A cataract can affect one or both eyes, but it doesn't spread from one eye to the other. Cataracts usually develop slowly. As they get worse, your vision can become blurry or dim. Brighter lighting or new eyeglasses may help at first, but if cataracts begin to interfere with your daily activities, you may need cataract surgery. Without treatment, cataracts can cause severe or even permanent loss of vision.
Resources
Join the Hyperferritinemia-Cataract Syndrome community
Talk with people who understand, share what helps, and find support from others living with hyperferritinemia-cataract syndrome. Private, moderated, and free.
Posts in this community reflect personal experiences, not medical advice. Always talk to your doctor before changing your treatment.