Community
Lupus (SLE)
Flare tracking, organ monitoring, and support for people living with systemic lupus erythematosus
This information is for educational purposes only and is not medical advice. Always consult your healthcare provider about your specific condition and treatment.
When to seek help
Seek care for chest pain, trouble breathing, or signs of kidney problems such as swelling in the legs or foamy urine.
If you are experiencing a medical emergency, contact your local emergency services immediately.
Overview
Lupus (systemic lupus erythematosus, or SLE) is a chronic autoimmune disease in which the immune system attacks the body's own tissues, affecting the skin, joints, kidneys, and other organs.
Symptoms
- A butterfly-shaped rash across the cheeks and nose
- Joint pain and swelling
- Extreme fatigue
- Sensitivity to sunlight
- Fever and hair loss
Causes
The exact cause is unknown. It is an autoimmune disease where genes, hormones, and triggers like sunlight, infections, and stress all play a role.
Types
- Systemic lupus erythematosus (SLE) - affects the whole body
- Cutaneous lupus - mainly affects the skin
- Drug-induced lupus - triggered by certain medicines
- Neonatal lupus - a rare form affecting newborns
Diagnosis
Diagnosis combines symptoms, blood tests (ANA, anti-dsDNA, complement), and sometimes a kidney or skin biopsy. It can be hard to diagnose because symptoms vary.
Treatment
Treatment reduces inflammation and prevents flares, commonly with hydroxychloroquine, steroids, and immunosuppressants. A rheumatologist tailors care and monitors organs.
Living with it
- Wear SPF 50+ sunscreen and sun-protective clothing daily
- Pace yourself and rest during flares
- Take medicines consistently, especially hydroxychloroquine
- See a rheumatologist regularly and monitor your kidneys
- Manage stress - it can trigger flares
Complications
- Lupus nephritis (kidney inflammation)
- Heart and lung inflammation
- Increased risk of blood clots
- Pregnancy complications
- Depression and fatigue
Frequently asked questions
Is lupus contagious?
No. Lupus cannot be passed from person to person.
Join the Lupus (SLE) community
Talk with people who understand, share what helps, and find support from others living with lupus (sle). Private, moderated, and free.
Posts in this community reflect personal experiences, not medical advice. Always talk to your doctor before changing your treatment.