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SOST-Related Sclerosing Bone Dysplasia
A hyperostosis that is caused by a mutation in the SOST gene which causes overgrowth of endosteal bone producing dense and wide bones throughout the body especially in skull.
This information is for educational purposes only and is not medical advice. Always consult your healthcare provider about your specific condition and treatment.
When to seek help
Seek medical help right away if you have severe, sudden, or worsening symptoms, trouble breathing, chest pain, or any symptom that feels life-threatening. This community is for peer support and education only and is not a substitute for professional medical advice.
If you are experiencing a medical emergency, contact your local emergency services immediately.
Overview
A hyperostosis that is caused by a mutation in the SOST gene which causes overgrowth of endosteal bone producing dense and wide bones throughout the body especially in skull.
Resources
Join the SOST-Related Sclerosing Bone Dysplasia community
Talk with people who understand, share what helps, and find support from others living with sost-related sclerosing bone dysplasia. Private, moderated, and free.
Posts in this community reflect personal experiences, not medical advice. Always talk to your doctor before changing your treatment.