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Von Willebrand Disease
An inherited bleeding disorder from low or defective clotting factor.
This information is for educational purposes only and is not medical advice. Always consult your healthcare provider about your specific condition and treatment.
When to seek help
Seek emergency care for bleeding that will not stop, a head injury, or any heavy internal bleeding.
If you are experiencing a medical emergency, contact your local emergency services immediately.
Overview
Von Willebrand disease (VWD) is the most common inherited bleeding disorder. It affects a protein called von Willebrand factor that helps blood clot, causing easy bruising and prolonged bleeding.
Symptoms
- Frequent or easy bruising
- Nosebleeds that are hard to stop
- Heavy or prolonged menstrual bleeding
- Bleeding for a long time after injury, surgery, or dental work
Causes
Usually inherited - a gene change reduces the amount or function of von Willebrand factor. It can also be acquired later in life.
Types
- Type 1 - low levels (most common, usually mild)
- Type 2 - the factor does not work properly
- Type 3 - little or no factor (rare and severe)
Diagnosis
Diagnosed with blood tests that measure von Willebrand factor levels and function, sometimes repeated because levels vary.
Treatment
Treatment depends on the type and severity and may include desmopressin (DDAVP), medicines that help clotting, or replacement of von Willebrand factor. Many people with mild VWD need treatment only before surgery or dental work.
Living with it
- Tell every provider and dentist about your VWD before procedures
- Avoid aspirin and NSAIDs unless your doctor approves
- Carry a medical ID
- Plan ahead for surgery, dental work, and childbirth
Complications
- Heavy menstrual bleeding and anemia
- Bleeding after surgery or childbirth
- Joint or internal bleeding (mainly type 3)
Resources
Frequently asked questions
Is VWD the same as hemophilia?
No. Both are bleeding disorders, but they involve different clotting proteins and are managed differently. VWD affects both sexes and is usually milder.
Join the Von Willebrand Disease community
Talk with people who understand, share what helps, and find support from others living with von willebrand disease. Private, moderated, and free.
Posts in this community reflect personal experiences, not medical advice. Always talk to your doctor before changing your treatment.